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BEVERLY EAVES PERpUE GOVERNOR FABRY DISEASE AWARENESS MONTH 2010 BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA A PROCLAMATION WHEREAS, Fabry Disease is a rare, progressive, destructive and life-threatening inherited disorder that causes children and adults to suffer a cascade of life-altering symptoms such as pain, decreased ability to perspire, intolerance to heat and exercise, unexplained fevers and gastrointestinal upset, which lead to excessive absences at school and work; as it progresses, Fabry Disease may cause hearing loss, lung disease, heart disease, kidney disease, cerebrovascular disease, and other debilitating symptoms, and may also cause premature death in adults due to heart attacks, strokes and kidney failure; and WHEREAS, Fabry Disease is caused by deficient activity of the lysosomal enzyme alpha-galactosidase A that causes insufficient breakdown of lipids; lipids build up to harmful levels in the body causing lysosomal and cellular dysfunction ; and WHEREAS, an enzyme assay test for males and molecular DNA test for females can confirm Fabry Disease; and WHEREAS~ the current estimate of classic Fabry Disease incidence in the United States is I in 50,000 males and, twice as many females, with a very high but lesser percentage of females with disease symptoms; and WHEREAS, recent newborn screening studies in other countries suggest 'there are likely to be 20 times as many males with late-onset Fabry Disease in the United States; and . WHEREAS, due to lack of awareness, Fabry Disease is a severely under-recognized, misdiagnosed and undiagnosed disorder, and when diagnosed, it is often too late to prevent irreversible organ damage; and WHEREAS, increased physician and family education are critical to recognizing Fabry Disease; and WHEREAS, the Federal Drug Administration approved a treatment for Fabry Disease in April 2003; and WHEREAS, awareness and education are key to fighting this tragic but treatable di sorder; NOW, THEREFORE, I, BEVERLY EAVES PERDUE, Governor of the State of North Carolina, do hereby proclaim April2010, as "FABRY DISEASE AWARENESS MONTH" in North Carolina and urge citizens to learn about Fabry Disease and assess family risk. BEVERLY EA YES PERDUE IN WlTNESS hereunto set my hand and affixed the Great Seal of the State of North Carolina at the Capitol in Raleigh this ninth day of March in the year of our Lord two thousand and ten, and of the Independence of the United States of America the two hundred and thirty-fourth.
Object Description
Title | Perdue, Bev. Proclamation, 2010-03-09, Fabry Disease Awareness Month |
Other Title | 2010-03-09, Fabry Disease Awareness Month |
Creator |
North Carolina. Office of the Governor Perdue, Bev, 1947- |
Date | 2010-03-09 |
Subjects |
Perdue, Bev, 1947- Governors--North Carolina Proclamations--North Carolina |
Time Period | (1990-current) Contemporary |
Description | Records contain official proclamations issued by the Governor on behalf of various organizations and individuals, or in relation to public events. |
Collection | Beverly Perdue. Governors' Papers. State Archives of North Carolina |
Type | Text |
Format | Proclamations |
Digital Collection | Governors Papers, Modern |
Digital Format | application/pdf |
Description
Title | Page 1 |
Full Text | BEVERLY EAVES PERpUE GOVERNOR FABRY DISEASE AWARENESS MONTH 2010 BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA A PROCLAMATION WHEREAS, Fabry Disease is a rare, progressive, destructive and life-threatening inherited disorder that causes children and adults to suffer a cascade of life-altering symptoms such as pain, decreased ability to perspire, intolerance to heat and exercise, unexplained fevers and gastrointestinal upset, which lead to excessive absences at school and work; as it progresses, Fabry Disease may cause hearing loss, lung disease, heart disease, kidney disease, cerebrovascular disease, and other debilitating symptoms, and may also cause premature death in adults due to heart attacks, strokes and kidney failure; and WHEREAS, Fabry Disease is caused by deficient activity of the lysosomal enzyme alpha-galactosidase A that causes insufficient breakdown of lipids; lipids build up to harmful levels in the body causing lysosomal and cellular dysfunction ; and WHEREAS, an enzyme assay test for males and molecular DNA test for females can confirm Fabry Disease; and WHEREAS~ the current estimate of classic Fabry Disease incidence in the United States is I in 50,000 males and, twice as many females, with a very high but lesser percentage of females with disease symptoms; and WHEREAS, recent newborn screening studies in other countries suggest 'there are likely to be 20 times as many males with late-onset Fabry Disease in the United States; and . WHEREAS, due to lack of awareness, Fabry Disease is a severely under-recognized, misdiagnosed and undiagnosed disorder, and when diagnosed, it is often too late to prevent irreversible organ damage; and WHEREAS, increased physician and family education are critical to recognizing Fabry Disease; and WHEREAS, the Federal Drug Administration approved a treatment for Fabry Disease in April 2003; and WHEREAS, awareness and education are key to fighting this tragic but treatable di sorder; NOW, THEREFORE, I, BEVERLY EAVES PERDUE, Governor of the State of North Carolina, do hereby proclaim April2010, as "FABRY DISEASE AWARENESS MONTH" in North Carolina and urge citizens to learn about Fabry Disease and assess family risk. BEVERLY EA YES PERDUE IN WlTNESS hereunto set my hand and affixed the Great Seal of the State of North Carolina at the Capitol in Raleigh this ninth day of March in the year of our Lord two thousand and ten, and of the Independence of the United States of America the two hundred and thirty-fourth. |